On Saturday, 23rd July, our friend Greg Terka sets off for his longest yet motorcycle trip: London – Siberia. He is going to ride across Europe, Russia, Kazakhstan and Mongolia. He plans to complete the 20,000 km (12,500 miles) trip in 2 months. During his journey Greg wants to support Antoni and raise awareness of other kids with Kabuki Syndrome. Greg is an extremelyLearn more »
Welcome to the webpage of our son Antoni Szymczak.Antoni had a very difficult start in his life. He spent a lot of time in hospitals where he had to go through a lot of painful medical procedures. He has a rare genetic disorder called Kabuki Syndrome which presents in complex medical needs and significant developmental delay.
In spite of this, he is a cheerful, happy boy, who smiles and laughs a lot, loves to dance and sing, play games and watch his favourite TV shows, like any other child :)
As the parents, we want to keep account of what is going on in Antoni’s life, and also to give an insight into the struggles facing the families with disabled children. We want to thank all those who helped, and keep helping, us. Let this be a way to express our gratitude by celebrating Antoni’s happy life.
We'd love to read your comments, so please leave us a note.
19th July was the last day of English school for Antoni (Polish school finished on 26th June). In September he will go two classes up, as the teachers believe Antoni is doing very well at school and should be able to manage skipping a class. He will again be the youngest, and there will be more children in the class than last year –Learn more »
On 10th of July Antoni had his 6th birthday… and not so long ago he was so little: http://www.a ntoniszymczak.com/2011/06/gastrostomy/ For the last few weeks Antoni constantly talked about the upcoming birthday party and the invited guests. There were about sixteen children at the party (we lost count after about ten). There were children from both English and Polish (Saturday) school, and also friends from outsideLearn more »